For Patients & Families
Join the SCNIR
It’s easy to join the Severe Chronic Neutropenia Registry (SCNIR)!
We invite all individuals with severe chronic neutropenia or a related condition to join the registry. If you are interested in enrolling yourself and/or your child in the SCNIR, please fill out this form so we can contact you or click here to contact us directly.
​
The research team will contact you to schedule a time to provide information about the registry and review the consent form.
​
Once you have enrolled in the registry, we will ask you to fill out a medical release form so that we can request relevant medical records. To protect, the confidentiality of your medical records, the SCNIR research team will assign a unique code to each participant. This coded information will be entered into a secure computer database.
SCNIR Patient Handbook
The patient handbook includes information about the following topics.
Click the links to learn more!