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ANNOUNCEMENTS
Action Needed: Annual SCNIR Medical Update Form
We’re updating our records and we need your help! Please complete this 10-minute form to ensure our research reflects your current experience. Check your inbox for the SCNIR Annual Medical Care Update Form and complete today. If you didn’t receive the form, please reach out to us at SCNIR-dl@childrens.harvard.edu. Thank you for supporting our ongoing research!
Thank you to everyone who participated in our survey opportunity! We are grateful for your time and efforts and look forward to sharing the results of this study soon!
Neupogen Backorder Information
Were you unable to attend the SCNIR Family Day 2024?
No problem! Click here to check out the recordings from each talk:
Our mission
The Severe Chronic Neutropenia International Registry is committed to accelerating the pace of discovery for treatments and therapies for neutropenia. The Registry provides access to clinical expertise as well as cutting-edge research.
samples & records
Every patient holds vital clues to advance our understanding of neutropenia. The SCNIR gives patients the opportunity to confidentially share medical information and samples with researchers working to cure neutropenia. Participants are never required to donate samples or have additional procedures/draws for research.
Questions?
Physicians or patients with questions about neutropenia are welcome to contact our medical team.
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